"Inspiration porn" refers to material about people with disabilities where the primary focus is either on the "AB" caregivers and their emotional responses to us living our lives, or is some voyueristic exploitation of some struggle we have, to make "normals" feel good about themselves. I truly do understand why it's a problem, and why it can be demeaning. As one TED speaker put it in paraphrase, I'm not a hero for getting out of bed this morning.
On the other hand...
A cross is a cross. If someone says to me, "You inspire me," charity requires that my first instinct should be to take him or her at face value. Have you ever noticed all the dying and disabled kids who love sports teams? You might wonder why. The secret is this: Weakness, inability, and failure is a reminder of creatureliness and mortality. Athletic glory and victory is a reminder of the perfection of Heaven. If someone pays you this compliment, stand in awe. Yes, your words may teeter on the edge of the maudlin here, as you try to receive this, but do try. I'm telling you that this vale of tears is a little more bearable because of the glory of your body, and what you can do with it. It's a tough balance, but if you pay me respect, I don't mind if you draw a little inspiration from me. It's only fair.
I love Roger Federer. Every time I see his face, or get to see a match, I feel joy. As he has struggled in these later years to tell Father Time to sit down and shut up, I've loved him all the more. We all face these reminders of mortality; a disability allows you to face them more acutely.
If Roger Federer told me that I inspired him to dig a little deeper, to push harder, I would nod in respect. He's earned that right, by doing his job so well. And of course, it's not something that he couldn't or wouldn't say to any fan. I need a gracious humility, to receive that in the spirit in which it was intended.
I give people a wide latitude in this. Life is actually hard for all of us. Anything we can do to help each other, we should do. I guess if I could sense an attempt to put me in my place, or to brush me aside, is a different matter.
On the other hand...
A cross is a cross. If someone says to me, "You inspire me," charity requires that my first instinct should be to take him or her at face value. Have you ever noticed all the dying and disabled kids who love sports teams? You might wonder why. The secret is this: Weakness, inability, and failure is a reminder of creatureliness and mortality. Athletic glory and victory is a reminder of the perfection of Heaven. If someone pays you this compliment, stand in awe. Yes, your words may teeter on the edge of the maudlin here, as you try to receive this, but do try. I'm telling you that this vale of tears is a little more bearable because of the glory of your body, and what you can do with it. It's a tough balance, but if you pay me respect, I don't mind if you draw a little inspiration from me. It's only fair.
I love Roger Federer. Every time I see his face, or get to see a match, I feel joy. As he has struggled in these later years to tell Father Time to sit down and shut up, I've loved him all the more. We all face these reminders of mortality; a disability allows you to face them more acutely.
If Roger Federer told me that I inspired him to dig a little deeper, to push harder, I would nod in respect. He's earned that right, by doing his job so well. And of course, it's not something that he couldn't or wouldn't say to any fan. I need a gracious humility, to receive that in the spirit in which it was intended.
I give people a wide latitude in this. Life is actually hard for all of us. Anything we can do to help each other, we should do. I guess if I could sense an attempt to put me in my place, or to brush me aside, is a different matter.
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